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I have two sons both affected by Alph Thalassemia Intellectual Disabilty Disorder (ATR-X). Both boys are missing two DNA base pairs (ASP and GLU). Is there a particular diet that would benefit them?

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Thank you very much for sharing your concerns with us regarding your sons. Despite their disease, I am sure they are two wonderful boys who bring joy to your life.

Regarding ATR-X, I am not aware of any particular diet that is beneficial, and I reviewed some articles to come up with a better answer for you. The most I could come up with was the need for high calorie diets to keep their nutrition in check. At times botox injections are needed to help with the digestion.

If you want to discuss your kids’ case with an oncology nutritionist from Cancerdocs please contact us or click here.

Sincerely yours

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